Who makes sure my rights are protected?
In New Zealand a trial must be approved by an ethics committee. This committee is made up of health professionals, scientists and members of the public. A trial cannot go ahead without the approval of the ethics committee.
The ethics committee’s job is to review all clinical trials (research studies) and make sure they are run safely and fairly. The ethics committee can stop a clinical trial at any stage if they have concerns about the welfare of the people participating.
Under the Privacy Law of New Zealand your privacy is protected. Information collected and recorded as part of a clinical trial will have a special code instead of your name.